Defining and characterising a toolkit for the development of a successful European registry for rare liver diseases: a model for building a rare disease registry
Marinos Pericleous, Claire Kelly, Michael Schilsky, Anil Dhawan and Aftab Ala
DOI: https://doi.org/10.7861/clinmed.2021-0725
Clin Med July 2022 Marinos Pericleous
ARoyal Surrey NHS Foundation Trust, Guildford, UK, and postgraduate researcher, University of Surrey, Guildford, UK
Roles: consultant gastroenterologist, hepatologist and general physician
Claire Kelly
BUniversity of Surrey, Guildford
Roles: clinical research fellow
Michael Schilsky
CYale–New Haven Transplantation Center, Yale University, New Haven, USA
Roles: professor of medicine and medical director of adult liver transplant
Anil Dhawan
DKing's College Hospital NHS Foundation Trust, London, UK
Roles: director of research and innovation and director of the Paediatric Liver GI and Nutrition Centre and MowatLabs
Aftab Ala
EInstitute of Liver Studies, Kings College Hospital NHS Foundation Trust, London, UK, Faculty of Health and Medical Sciences (FHMS), University of Surrey and professional director of research, development and Innovation Royal Surrey NHS Foundation Trust, Guildford, UK
Roles: professor of hepatology, consultant hepatologist
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vol. 22 no. 4 340-347
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- Published online July 26, 2022.
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- Marinos Pericleous, consultant gastroenterologist, hepatologist and general physicianA,
- Claire Kelly, clinical research fellowB,
- Michael Schilsky, professor of medicine and medical director of adult liver transplantC,
- Anil Dhawan, director of research and innovation and director of the Paediatric Liver GI and Nutrition Centre and MowatLabsD and
- Aftab AlaE, professor of hepatology, consultant hepatologist⇑
- ARoyal Surrey NHS Foundation Trust, Guildford, UK, and postgraduate researcher, University of Surrey, Guildford, UK
- BUniversity of Surrey, Guildford
- CYale–New Haven Transplantation Center, Yale University, New Haven, USA
- DKing's College Hospital NHS Foundation Trust, London, UK
- EInstitute of Liver Studies, Kings College Hospital NHS Foundation Trust, London, UK, Faculty of Health and Medical Sciences (FHMS), University of Surrey and professional director of research, development and Innovation Royal Surrey NHS Foundation Trust, Guildford, UK
- Address for correspondence: Professor Aftab Ala, Institute of Liver Studies, King's College Hospital NHS Foundation Trust, Denmark Hill, London SE5 9RS, UK. Email: aftab.ala1{at}nhs.net
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Defining and characterising a toolkit for the development of a successful European registry for rare liver diseases: a model for building a rare disease registry
Marinos Pericleous, Claire Kelly, Michael Schilsky, Anil Dhawan, Aftab Ala
Clinical Medicine Jul 2022, 22 (4) 340-347; DOI: 10.7861/clinmed.2021-0725
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Defining and characterising a toolkit for the development of a successful European registry for rare liver diseases: a model for building a rare disease registry
Marinos Pericleous, Claire Kelly, Michael Schilsky, Anil Dhawan, Aftab Ala
Clinical Medicine Jul 2022, 22 (4) 340-347; DOI: 10.7861/clinmed.2021-0725
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