TY - JOUR T1 - ‘What is the risk to me from COVID-19?’: Public involvement in providing mortality risk information for people with ‘high-risk’ conditions for COVID-19 (OurRisk.CoV) JF - Clinical Medicine JO - Clin Med SP - e620 LP - e628 DO - 10.7861/clinmed.2021-0386 VL - 21 IS - 6 AU - Amitava Banerjee AU - Laura Pasea AU - Sinduja Manohar AU - Alvina G Lai AU - Eade Hemingway AU - Izaak Sofer AU - Michail Katsoulis AU - Harpreet Sood AU - Andrew Morris AU - Caroline Cake AU - Natalie K Fitzpatrick AU - Bryan Williams AU - Spiros Denaxas AU - Harry Hemingway AU - and members of the Health Data Research UK COVID-19 Patient and Public Involvement and Engagement Panel Y1 - 2021/11/01 UR - http://www.rcpjournals.org/content/21/6/e620.abstract N2 - Patients and public have sought mortality risk information throughout the pandemic, but their needs may not be served by current risk prediction tools. Our mixed methods study involved: (1) systematic review of published risk tools for prognosis, (2) provision and patient testing of new mortality risk estimates for people with high-risk conditions and (3) iterative patient and public involvement and engagement with qualitative analysis. Only one of 53 (2%) previously published risk tools involved patients or the public, while 11/53 (21%) had publicly accessible portals, but all for use by clinicians and researchers.Among people with a wide range of underlying conditions, there has been sustained interest and engagement in accessible and tailored, pre- and postpandemic mortality information. Informed by patient feedback, we provide such information in ‘five clicks’ (https://covid19-phenomics.org/OurRiskCoV.html), as context for decision making and discussions with health professionals and family members. Further development requires curation and regular updating of NHS data and wider patient and public engagement. ER -