RT Journal Article
SR Electronic
T1 Neuromuscular conditions for physicians – what you need to know
JF Clinical Medicine
JO Clin Med
FD Royal College of Physicians
SP 259
OP 261
DO 10.7861/clinmedicine.16-3-259
VO 16
IS 3
A1 Laura Edwards
A1 Margaret Phillips
YR 2016
UL http://www.rcpjournals.org/content/16/3/259.abstract
AB The Royal College of Physicians (RCP) and the British Society of Rehabilitation Medicine co-hosted a meeting entitled ‘Neuromuscular conditions for physicians – what you need to know’ at the RCP on 30 November 2015. There was a series of talks, ranging from in-depth genetic and molecular descriptions of pathology to multidisciplinary management of chronic neuromuscular conditions, which stimulated lively debate and discussion. Some overarching themes emerged from the day, most notably: i) the changing expectations and survival rates in Duchenne muscular dystrophy (DMD), which are transforming this disorder into an adult as much as a paediatric condition; ii) the need for integrated management and good communication ­between services – whether primary, secondary and tertiary care, medical teams and intensivists, or the multiple teams involved in providing treatment to neuromuscular patients; and iii) in line with the above, the essential need for streamlining care such that patients can avoid spending most of their time attending outpatient appointments, and instead concentrate on living full lives and exploring educational, occupational, leisure and social opportunities.