Participant perceptions about the importance of notes to engage in care
| Overall n=7,246 | Adolescents and young adults n=332 | Adults n=6,914 | Odds ratioa (95% CI) | |
|---|---|---|---|---|
| How important is reading your notes in feeling informed about your care? | 0.9 (0.7,1.3) | |||
| 0-5 | 623 (9.6%) | 17 (9.3%) | 606 (9.6%) | |
| 6-8 | 1,766 (27.2%) | 54 (29.5%) | 1,712 (27.2%) | |
| 9-10 | 4,093 (63.1%) | 112 (61.2%) | 3,981 (63.2%) | |
| How important is reading your notes in understanding how your provider(s) are thinking about your medical conditions? | 0.8 (0.6,1.1) | |||
| 0-5 | 715 (11.0%) | 20 (10.9%) | 695 (11.0%) | |
| 6-8 | 1,874 (28.9%) | 65 (35.5%) | 1,809 (28.7%) | |
| 9-10 | 3,892 (60.1%) | 98 (53.6%) | 3,794 (60.2%) | |
| How important is reading your notes in remembering the plan for your care? | 0.9 (0.7,1.2) | |||
| 0-5 | 1,768 (27.3%) | 51 (27.9%) | 1,717 (27.3%) | |
| 6-8 | 1,842 (28.4%) | 55 (30.1%) | 1,787 (28.4%) | |
| 9-10 | 2,870 (44.3%) | 77 (42.1%) | 2,793 (44.4%) | |
| How important is reading your notes in helping you make decisions about your care? | 0.8 (0.6,1.1) | |||
| 0-5 | 1,648 (25.4%) | 53 (29.0%) | 1,595 (25.3%) | |
| 6-8 | 1,966 (30.3%) | 56 (30.6%) | 1,910 (30.3%) | |
| 9-10 | 2,867 (44.2%) | 74 (40.4%) | 2,793 (44.4%) | |
↵aThe odds ratio was calculated based on the outcome of interest - notes are ‘extremely important’ - defined as odds of ‘9-10’ versus other combined categories in AYA compared with adults.