Phase 1: Project development at Evelina Pride group meeting (n = 12) |
Aim: to develop a project plan and agree membership of core working group and wider review group. Idea and plan for project discussed and agreed. Evelina Pride members either became part of the core group – which involved attending workshops and co-authoring the paper – or wider review group to participate indirectly. Initial discussion of young people’s expectations of quality healthcare and their experiences highlighted good and poor practice. Three main themes of communication, relationship and understanding of patients as adolescents or young adults emerged.
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Phase 2: Workshop 1 (core working group (n = 4)) |
Aim: to provide a personal context to enable the development of a framework for service evaluation. Discussion of young people’s experiences of healthcare building on broad themes highlighted by Evelina Pride group meeting. Key issues noted and mapped into visual model (Fig 1). Thematic analysis of narrative from workshop discussion. Model sent via email to wider review group for comments, amendments and agreement.
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Phase 3: Workshop 2 (core working group (n = 4)) |
Aim: to provide a service context for the core group through a structured discussion about key Department of Health recommendations for quality services and a review of available service evaluation methods. Summary of Care Quality Commission paper presented to group (see online-only supplementary material: S1). Structured discussion of using satisfaction measures and the 15 Steps Challenge Toolkit. Review of You’re Welcome quality criteria. Evaluation of the gap between their experiences and existing criteria for evaluating services. Identification of themes they felt were integral to an assessment framework. Key words and phrases from narrative in both workshops used to create statements, which formed the criteria in the assessment framework. Statements/criteria sent to wider review group via electronic surveys to enable feedback and agreement of criteria to be used in final framework.
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Phase 4: Co-authoring final paper (core working group (n = 4)) |
Aim: to agree final framework, model and write-up of paper. Core group led on results section of paper, providing a narrative of their experiences to illustrate criteria selected for assessment framework. Paper revised and final version agreed following successive drafts with feedback from wider review group through final meetings and emails.
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