Box 1.

Involvement of different specialists and providers in the care of patients with Duchenne muscular dystrophy.

Medical
Paediatric clinics
Transition clinics
Adult clinics
Genetics
Neurology
Pathology
Neuromuscular disease
Rehabilitation
Orthopaedics
Cardiology
Respiratory
Pain management
Psychiatry
Endocrinology
Anaesthesia
Intensive care medicine
Allied healthcare professionals
Musculoskeletal physiotherapy
Occupational therapy
Speech and language therapy
Dietetics
Psychology
Social work
Care coordinator
Technical staff (electrocardiography, lung function etc)
Phlebotomy
Neurological physiotherapy
Non-invasive ventilation team
Respiratory physiotherapy
Play therapy
Nursing
Family support
Administrative staff