Box 1.

Recommendations for patient education1

  • Discuss treatment options and monitoring.

  • Give appropriate information, advice and support in line with published NICE guidance on: smoking cessation, patient experience, medicines adherence and fertility.

  • Discuss the possible nature, frequency and severity of side effects of drug treatment with people with CD, and/or their parents or carers if appropriate.

  • Give appropriate, additional information on the following when appropriate: possible delay of growth and puberty in children, diet and nutrition, fertility and sexual relationships, prognosis, side effects of their treatment, cancer risk, surgery, care of young people in transition between paediatric and adult services, contact details for support groups.

  • Offer age-appropriate multidisciplinary support to deal with any concerns about the disease and its treatment, including concerns about body image, living with a chronic illness, and attending school and higher education.