Box 1.

Key features of the Patients Know Best web-based portal

Access to personalised healthcare record including: diagnosis, current and past medications with previous adverse reactions if applicable and links to patient information resources
Access to investigation results through integration with the trust IT reporting system
Disease activity assessment tools and symptom tracker: stool frequency, blood in stools, abdominal pain, fatigue, urgency
Improved communication with the IBD team including secure messaging with the ability to add file attachments (documents or photographs)