'Permission to participate?' A qualitative study of participation in patients from differing socio-economic backgrounds

J Health Psychol. 2013 Aug;18(8):1046-55. doi: 10.1177/1359105312459876. Epub 2012 Oct 26.

Abstract

Participation in health care is an important element of self-management in chronic illness, and policy emphasises patient's choice. Evidence suggests that this may be inequitable and inadequate, since active participation is strongly associated with socio-demographic variables. This qualitative study explores the perceptions of participation in people with differing socio-economic status with themes related to health literacy and relationship with health-care professionals. Patients perceive participation in different ways, related to their prior expectations of a health-care consultation, cultural expectations and social position. Policies aimed at simply improving 'health literacy' and choice will not be successful if these broader disparities are not addressed.

Keywords: choice; health literacy; participation; self-management; shared decision-making.

Publication types

  • Comparative Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Aged
  • Decision Making
  • Female
  • Health Knowledge, Attitudes, Practice*
  • Health Literacy / economics
  • Health Literacy / statistics & numerical data
  • Humans
  • Male
  • Middle Aged
  • Patient Participation / economics
  • Patient Participation / psychology*
  • Professional-Patient Relations*
  • Qualitative Research
  • Social Class*