Anneke Lucassen and Alison Hall a 'Genetic'refers to genes,'genomic'to genomes. The word
'genome'is a conflation of the words gene and chromosome and was first coined in the …

Against a background of increasing regulation regarding access to medical information and
the presentation of patients' confidentiality, the case of genetic information raises interesting …

This chapter will explore the extent to which the familial nature of genetic information creates
an ethical problem for our current conceptions of informed consent in the context of genetic …

Recent discussions of genetic information have highlighted the need for ethical disclosure
guidelines. For instance, the (Canadian) Royal Commission on New Reproductive …

Informed consent is a vital ethical doctrine in clinical medicine and, through genetic
counselling, is being applied to genetic testing. But genetic testing raises issues that …

See Waggoner WC, Mayo DM. Who understands? A survey of 25 words or phrases
commonly used in proposed clinical research consent forms. IRB 1995: 17 (1): 6; Waggoner …

Developments in information technology and advances in genetics present challenges to
physicians in terms of providing adequate informed consent. Genetic mechanisms and …

Purpose Data sharing between clinicians, laboratories, and patients is essential for
improvements in genomic medicine, but obtaining consent for individual-level data sharing …

This chapter contains sections titled: The Importance of Medical Confidentiality Important but
not Absolute Protection of Third Party Interests/Welfare Genetic Testing Respect for …

Important advances in genetics research have been made in recent years. Such advances
have facilitated the availability of huge amounts of genetic information that could potentially …