Long-term neurological conditions: management at the interface between neurology, rehabilitation and palliative care

L Turner-Stokes, N Sykes, E Silber… - Clinical medicine, 2008 - Elsevier
Long-term neurological conditions (LTNCs) comprise a diverse set of conditions resulting
from injury or disease of the nervous system that will affect an individual for life. Some 10 …

From diagnosis to death: exploring the interface between neurology, rehabilitation and palliative care in managing people with long-term neurological conditions

L Turner-Stokes, N Sykes, E Silber, A Khatri… - Clinical …, 2007 - ncbi.nlm.nih.gov
This article reports a parallel survey of consultants working in the fields of neurology,
rehabilitation and palliative medicine, and explores the interface between the three …

A consensus review on the development of palliative care for patients with chronic and progressive neurological disease

DJ Oliver, GD Borasio, A Caraceni… - European journal of …, 2016 - Wiley Online Library
Background and purpose The European Association of Palliative Care Taskforce, in
collaboration with the Scientific Panel on Palliative Care in Neurology of the European …

[HTML][HTML] The role of palliative care in chronic progressive neurological diseases—A survey amongst neurologists in the Netherlands

HAW Walter, AA Seeber, DL Willems… - Frontiers in …, 2019 - frontiersin.org
Background: Chronic progressive neurological diseases like high grade glioma (HGG),
Parkinson's disease (PD), and multiple sclerosis (MS) are incurable, and associated with …

End-of-life care in neurodegenerative conditions: outcomes of a specialist palliative neurology service

J Hussain, D Adams… - International Journal of …, 2013 - magonlinelibrary.com
Background People with advanced neurological conditions (ANCs) face complex problems
and needs that are often unrecognised and undertreated. Their last year of life may be …

[PDF][PDF] The needs and experiences of services by individuals with long-term progressive neurological conditions and their carers. A Benchmarking Study

R Fitzpatrick, M Peters, H Doll, R Harris… - University of Oxford …, 2010 - awam.org.uk
This report describes a project to assess experiences of health and social care services for
patients with Motor Neurone Disease (MND), Multiple Sclerosis (MS) and Parkinson's …

The role of palliative care in patients with neurological diseases

GD Borasio - Nature reviews Neurology, 2013 - nature.com
Palliative care aims to improve the quality of life of patients and their families affected by life-
threatening illness. This approach applies to a large and growing proportion of neurological …

Perspectives of staff providing care at the end of life for people with progressive long-term neurological conditions

E Wilson, J Seymour, A Aubeeluck - Palliative & supportive care, 2011 - cambridge.org
Objective: This article examines the views and opinions of staff from a larger study exploring
the palliative and end-of-life care needs of patients with progressive long-term neurological …

Are supportive services meeting the needs of Australians with neurodegenerative conditions and their families?

LJ Kristjanson, SM Aoun, P Yates - Journal of palliative care, 2006 - journals.sagepub.com
Objective To identify the needs for supportive care/palliative care services of people in
Australia with four neurodegenerative disorders—motor neurone disease, multiple sclerosis …

Implementation issues relevant to outpatient neurology palliative care

BM Kluger, MJ Persenaire, SK Holden… - Annals of palliative …, 2018 - apm.amegroups.org
Background: There is growing interest in the application of palliative care principles to
improve care for patients and families affected by neurologic diseases. We developed an …