Developments over the last decade in legislation and professional guidance on
confidentiality and medical research in the UK are reviewed. Despite the General Medical …

There has been much recent discussion of the use of the UK's National Health Service
patient records for research purposes. The Academy of Medical Sciences has argued that …

Abstract Background On the May 25, 2018 the General Data Protection Regulation
(hereafter the GDPR or the Regulation) came into force, replacing the Data Protection …

Numerous reports have been issued by national and international bodies (Lowrance, 1997;
National Health and Medical Research Council, 1999; Canadian Institutes of Health …

The principle of medical confidentiality-that doctors must keep their patients' secrets-is one
of the most venerable moral obligations of medical ethics. The Hippocratic Oath enjoins:" …

The disclosure of confidential patient data without an individual's explicit consent should be
for purposes that persons have reason to both expect and accept. We do not currently have …

Medical confidentiality has long been recognised as a core element of medical ethics, but its
boundaries are under constant negotiation. Areas of debate in twenty-first century medicine …

Current UK legislation is impacting upon the feasibility and cost-effectiveness of medical
record-based research aimed at benefiting the NHS and the public heath. Whereas previous …

Health services research is important to ensure continued best quality of care, but often uses
data obtained without explicit consent for this purpose.• Obtaining consent may be difficult …

This paper considers the need for personal privacy within the context of epidemiological
research. It concludes that privacy can be protected by early anonymisation and aggregation …