Recording, using and sharing genetic information and test results: consent is the key in all medical specialties

PA Farndon - Clinical Medicine, 2006 - ncbi.nlm.nih.gov
For further information please contact the Publications Department, Royal College of
Physicians. about mode of inheritance and recurrence risks for the person originally …

Consent and Confidentiality in Genetic Practice: Guidance on Genetic Testing and Sharing Genetic Information

P Farndon, F Douglas - 2006 - books.google.com
1.3. 3 Consent for taking and testing samples from relatives living outside the area covered
by the genetic centre of the consultand 1.3. 4 Consent for continuing and further …

[HTML][HTML] Development of a consent resource for genomic data sharing in the clinical setting

ER Riggs, DR Azzariti, A Niehaus, SR Goehringer… - Genetics in …, 2019 - Elsevier
Purpose Data sharing between clinicians, laboratories, and patients is essential for
improvements in genomic medicine, but obtaining consent for individual-level data sharing …

[PDF][PDF] Informed consent in genetic research

ED Williams - Croatian medical journal, 2001 - neuron.mefst.hr
History demonstrates that, without adequate informed consent, research participants' rights
may be violated and their confidence in research as an enterprise undermined. If …

[HTML][HTML] Consent and confidentiality in clinical genetic practice: guidance on genetic testing and sharing genetic information

A Lucassen, A Hall - Clinical Medicine, 2012 - ncbi.nlm.nih.gov
Anneke Lucassen and Alison Hall a 'Genetic'refers to genes,'genomic'to genomes. The word
'genome'is a conflation of the words gene and chromosome and was first coined in the …

[PDF][PDF] Informed consent in genetics

BM Knoppers, D Avard, A Thorogood - eLS, 2012 - academia.edu
This chapter discusses the important role that informed consent plays in healthcare and
medical research involving genetic testing. The requirement of informed consent for …

Beyond consent: ethical and social issues in genetic testing

MM Burgess - Nature Reviews Genetics, 2001 - nature.com
Informed consent is a vital ethical doctrine in clinical medicine and, through genetic
counselling, is being applied to genetic testing. But genetic testing raises issues that …

The reuse of genetic information in research and informed consent

D Lorenzo, M Esquerda, M Bofarull, V Cusi… - European Journal of …, 2023 - nature.com
Important advances in genetics research have been made in recent years. Such advances
have facilitated the availability of huge amounts of genetic information that could potentially …

[CITATION][C] The UCLA experience in developing protocols for informed consent

LL McCabe, WW Grody, B Henker, C Jaenicke… - Genetics in …, 2000 - nature.com
The Doctrine of lnfonned Consent derives from dual origins in clinical medicine and in
biomedical research. Early development of Informed consent in clinical practice arose as a …

Informed consent in direct‐to‐consumer personal genome testing: the outline of a model between specific and generic consent

EM Bunnik, ACJW Janssens, MHN Schermer - Bioethics, 2014 - Wiley Online Library
Broad genome‐wide testing is increasingly finding its way to the public through the online
direct‐to‐consumer marketing of so‐called personal genome tests. Personal genome tests …